Our research support network (Parkinson’s UK)

2012 Conference

Abstract:
Our Research Support Network is a group of people affected by Parkinson’s with a passion for research. The network supports the work of the whole Research and Innovation Directorate at Parkinson’s UK. Members of the network inform the charity’s research strategy and are recruited to work with individual researchers on their specific projects. They also lead their own specific regional research support activities. 

This presentation aims to inform people about the wide range of involvement opportunities for people affected by Parkinson’s, and how we use our own internal good practice regarding involvement to support researchers with involvement in their own projects. It will showcase effective involvement at a range of levels within research.

We hope that people will learn that involvement can be supported by the voluntary sector, and that there is real enthusiasm from users to be partners in the research process. Discussions could include good-practice sharing with other voluntary organisations, and questions from researchers about how to recruit people for user involvement opportunities.