Archives: Conference

Abstract: For organisations that want to involve patients and the public in research, it can be difficult to find the time and the resources to provide training and support, particularly given the recent uncertain economic climate. Since 2009, Asthma UK and Alzheimer’s Society have taken a collaborative approach to delivering training to their supporters, focusing …

Abstract: We will present a poster on the importance of and barriers to involving young people in mental health research. We will highlight the strategies we have used to overcome these barriers. We will explore how young people’s views may differ from adults and how they can bring different perspectives as well as the particular …

Abstract: The Consumer Liaison Group (CLG) is a national network of cancer patients and carers, whose members’ patient and public involvement (PPI) work is an embedded part of UK cancer research. The 21 National Cancer Research Institute (NCRI) Clinical Studies Groups (CSGs) develop their own trials and coordinate the UK’s portfolio of trials and other …

Abstract: This poster describes an ideas marketplace. The purpose is to share as many ideas as fast as possible with all participants. The room is set up with flipchart on the walls, titled with certain areas of patient and public involvement (PPI), for example media, raising awareness, committees, participant-led research, armchair involvement, internal governance. Participants …

Abstract: The National Institute for Health Research (NIHR) Clinical Research Network: West Midlands ‘Patient, Carer and Public Involvement and Engagement’ (PCPIE) in research working group launched their PCPIE strategy on 6 March 2014. Development of this strategy required input from key regional patient and public involvement (PPI) stakeholders. Lay people, patients, carers, academic professionals and …

Abstract: The National Institute for Cardiovascular Outcomes Research (NICOR) collectspatient information from hospitals across the UK to try and improve the quality of careand outcomes for patients that have heart problems and treatments. NICOR publishes reports every year from all of its audits and wants to ensure that it is providing information to patients and …

Abstract: What people will learn How the Fistula plays a massive part in the world of Chronic Kidney Disease (CKD) How important and valued the Fistula is to renal patients, both for their well-being and psychologically For all healthcare staff to have empathy, understanding and knowledge that Fistula care need to be taken more seriously, …

Abstract: PRIMER is a patient, carer and public involvement group based at the Centre for Primary Care (CPC) at the University of Manchester. The group was set up in 2009 and works closely with researchers to encourage and support patient and public involvement (PPI). PRIMER is the first PPI group in the UK to focus …

Abstract: The poster content will include: The rationale for and mechanisms of forming an external advisory group supporting patient and public involvement (PPI). The issues concerning the recruitment of public contributors. The challenges of establishing a group of this type. Developing a high functioning group which has become a ‘critical friend’ to the organisation. The …

Abstract: For our poster we will map and describe the development of an integrated approach to establishing and developing patient, carer and public involvement (PPI) in research in the UK’s first Biomedical Research Centre (BRC) for Cancer and the Institute of Cancer Research Clinical Research Facility (CRF). We hope that people will learn how patients, …

Abstract: Background: The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a project which aims to increase patient and public involvement (PPI) in medicines development across Europe. Although the UK evidence base for PPI in health research is well established and growing, little is known about other European countries. Aims: To explore patients’ and the …

Abstract: In recent years, several UK and international funders of health and social care related research have adopted the policy of requiring explicit evidence of the ‘public’ voice in all aspects of project design. For many academic researchers engaged within research, evaluations or audit projects, this formal requirement to actively engage members of the public …