Patient and Public Involvement (PPI) Groups: Is there a right or wrong model?

2012 Conference

Abstract: Within NIHR CLAHRC for LNR we have two PPI groups with distinct memberships and ways of working. I will compare and contrast these groups and provide an overview of who is involved as well as their function, structure, method of operation, achievements and future plans. Both groups have the shared goal of ensuring that the patient and public perspective is not only heard but listened to and acted upon. In different ways, they provide a forum where research projects can be presented and at which a greater range of perspectives can be considered.

The reason for presenting these case studies is to demonstrate that there is not a set model for PPI groups and, by their very nature, each will be unique and constantly evolve. Consequently, we should be prepared to let them develop in their own way – our role being to support but not define the group. There will be sharing of ideas about what PPI groups do and how they operate, including: membership – who should be included/represented; support – what training and other forms of help should be available; and finally the potential benefits that these groups bring.