2014 Conference

Abstract: Securing greater patient and public involvement is a central theme of health policy in many countries (Coulter 2011) and is a growing healthcare phenomenon (Boote et al 2012, Staniszewska et al 2011, WHO 2006). However, the voice of the professional, in general, continues to have a stronger input and impact than that of the patient.

This paper will outline a framework for patient identified need that aims to address this imbalance by moving beyond the concept of ‘involvement’ at some point, to putting the patient voice first so that it sets the direction in determining research priorities, treatment and product innovations and methods of service provision.

Using a co-production methodology (Gillard et al), we have worked with patients, in different clinical and educational settings to develop this framework and identify some core underpinning principles that need to be present to foster good quality and effective patient and public involvement (PPI) that leads to innovation that is fit for purpose.

We will:

  • feedback on the patient experience of using this model when working with health technology industry to inform the development of new products and the NHS and higher education in regards to service innovation and education and research priorities.
  •  invite discussion on the potential value of the framework from their PPI experiences.

 

Authors

Dransfield ~ Annie

Member, Service User and Carer Community, University of Leeds. Working with the NHS and the University of Leeds has enabled Annie Dransfield to share her experience and knowledge using her skills as a teacher, a career which she loved but had to give up due to her caring responsibilities. She is an an active campaigner for patient and carer rights.

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McNichol ~ Elaine

Academic Lead for Service User and Carer Involvement, University of Leeds. Elaine McNichol is a registered nurse, academic and has been a carer. These experiences have combined to influence her passion for creating a culture where the lived experience and expertise of the patient and carer is seen as being critical to successful health care delivery and product innovation.

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Pitchforth ~ Arthur

Member, Service User and Carer Community, University of Leeds. As a member of the wound care group, Arthur Pitchforth has been involved in meetings with both industry and the university giving feedback on products that are at either the idea or development stage. He feels that if sharing his experience and knowledge can improve the future, that can only be good.

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