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Patient Panels: Active involvement in research

2014 Conference

Abstract: Achieving active public involvement in shaping research requires a number of diverse and innovative approaches.

As part of our ‘Participate’ programme at Bath Research and Development (BRD), we have three Health Research Panels, where 10-12 people with a specific condition or interest meet with researchers to discuss their ideas and plans. These established research panels are easy to call upon when needed. Feedback from panel members helps to develop and improve studies at all stages of the research process. As well as attending meetings, members comment on or review documents at home. We offer training and ongoing support to ensure maximum benefit.

Our panels are:

  • Pain Panel – people who have experience of living with chronic pain
  • Carers Panel – people who have experience of caring for a relative or friend
  • Healthy Living Panel – people who struggle to keep active and/or lose weight.

We can also facilitate tailored panels, by calling on members of our growing Participate Network, many of whom who have indicated their willingness to act as Research Partners on a range of health studies.

Public involvement improves research by ensuring relevant research questions and outcomes, and better communication with service users. Recruitment and dissemination of results is also improved.

Our Health Research Panels enable people to contribute their lived experiences and views in a supportive environment. We are told that panel members benefit from increased skills and confidence, learning about research, and the feeling of giving something back. The end result is good quality research, informed by meaningful public involvement.

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