Researcher perspectives of barriers to consumer participation
2012 Conference
Abstract:
During the past 8 years at School of Population Health and the Telethon Institute for Child Health Research 1344 researchers, students, health professionals, consumer and community members (service user and members of the public) have attended events and given feedback on barriers on implementing consumer and community
participation. This anecdotal feedback has been broadly themed into the following areas: lack of confidence, training, resources, time and funds; communication; level of knowledge of consumers.
In 2011 a small research project was conducted to formalise this anecdotal feedback. Researchers from both organisations were invited to participate in two focus groups to discuss their perception on barriers to participation. The focus groups were conducted by a qualitative researcher and attended by 20 senior and early career researchers and four interviews were also conducted.
The workshop will discuss the findings of the focus groups and using a small group discussion process to discuss the relevance of these findings to other countries. We aim to identify if barriers are global or only relevant in a local context. The feedback from the workshop discussion could be included in the final analysis of the research.
Authors
McKenzie ~ Anne
Involvment Program Manager, the University of Western Australia and Telethon Kids Institute. Anne McKenzie works as a Consumer Advocate at the University of Western Australia, where her key role is to increase consumer and community participation in health and medical research at both organisations. Anne is involved on state and national health related committees as a senior consumer representative for Consumers' Health Forum (Australia) and Health Consumers Council (Western Australia).
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