The changing landscape of a clinical trials unit: Working towards making PPI part of the culture of our organisation
2014 Conference
Abstract: The Medical Research Council MRC Clinical Trials Unit (MRC CTU) at University College Longon (UCL) develops, runs and reports clinical trials and other research studies in areas including cancer, HIV and other infectious diseases. The MRC CTU Patient and Public Involvement (PPI) Group, which includes staff and patient representatives as members, has been working towards increasing the profile of PPI across the Unit to make PPI and integral part of our research culture.
We want to share the breadth of our recent experiences and achievements including:
- Developing and implementing a PPI policy at MRC CTU
- How we support our researchers in their PPI activities
- How we support our patient representatives in their research activities
- How we ensure PPI in all of our clinical studies.
We will also highlight some of our individual activities including:
- Improving patient information sheets for our clinical trials: a joint project between staff and patients
- Collecting case studies of PPI in our clinical research: sharing the learning using examples of impact
- The development of some short films about PPI in clinical trials.
We will discuss issues that we have experienced such as the challenges of supporting PPI across a broad spectrum of activities and how we have tried to ensure consistent standards across all of our work. Our presentation will be codesigned and co-delivered by our staff and our patient representatives.
Authors
Cromarty ~ Ben
Ben Cromarty works with North Yorkshire AIDS Action charity and is a member of the UK-Community Advisory Board (UK-CAB) for HIV. He is the British HIV Association (BHIVA) Scientific and Education Sub-Committee Representative and a member of both the PIVOT (Protease Inhibitor monotherapy Versus Ongoing Triple-therapy in the long-term management of HIV infection) Trial Steering Committee and the Clinical Trials Unit at University College London (UCL) Patient and Public Involvement (PPI) Group.
View all articles by this authorMurphy ~ Claire
Claire Murphy is a trial manager at the Medical Research Council (MRC) Clinical Trials Unit at University College London (UCL). She is currently managing a new trial looking at aspirin in the treatment of cancer. As a member of the Unit’s patient and public invovlement (PPI) group, she is leading work towards improving the Unit’s patient information sheet template.
View all articles by this authorSouth ~ Annabelle
Annabelle South is the Research Impact Officer at the Medical Research Council (MRC) Clinical Trials Unit at University College London (UCL). She works to improve communication of the Unit's research and ensure it has maximum impact. Annabelle is an active memebr of the Unit's patient and public involvement (PPI) group, with current interest in improving the engagement of study participants.
View all articles by this authorStephens ~ Richard
Richard Stephens has patient experience of research having participated in nine clinical trials or other studies. He chairs National Cancer Research Institute (NCRI) Consumer Liaison Group (CLG) and National Institute for Health Research (NIHR) Cancer Patient and Public Involvement Steering Group (PPI SG), and is a PPI rep for NIHR Evaluation, Trials and Studies Coordinating Centre (NETSCC), Medical Research Council (MRC) Clinical Trials Unit (CTU) and Research for Patient Benefit (RfPB). He serves on two trial management groups (TMGs) and on several advisory boards, including Genomics England.
View all articles by this authorVale ~ Claire
Claire Vale is a researcher at the Medical Research Council (MRC) Clinical Trials Unit at University College London (UCL). As well as conducting and reporting systematic reviews, she also leads the Unit's patient and public involvement (PPI) group and has been involved in a number of activities relating to PPI through her work.
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