2014 Conference

Abstract: Public understanding of health research and access to information about local involvement opportunities is a widely recognised problem yet no simple solution seems to meet the public need.

As the Citizen Scientist Project Public Advisory Group, our goal was to help people find out about health research in our local area and opportunities where they can take part in research studies. The project aims to put the choice with the patient which we believe is a concept that is long overdue in clinical research. The Citizen Scientist Project is pushing a cultural change of encouraging members of the public to enquire about research rather than being approached by a clinician. This is important as the vast majority of patients whose health, care and treatment we are trying to improve live in our communities not in our clinics. We believe that by making research more accessible in this way we can increase awareness, understanding and acceptance of the research.

The practical implications for the Citizen Scientist project are how we best communicate local research to local people. Improving access to opportunities and understanding of what research is and isn’t are key objectives. We helped to determine the design and feel of the project and work closely with the management team to provide sense checks and oversight from a public perspective. We are proud to have helped drive this unique and innovative project forward. This poster is designed and presented by the Citizen Scientist Public Advisory Group (CSAG).

The Citizen Scientist Advisory Group supports the management team for the Citizen Scientist Project. They formed in early 2012 and consist of members of the local population of Salford. They have provided a means to sense check and support decision making for the project from early setup to its current plans for wider roll out.

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Authors

Backhouse ~ David

Patient Advocate, Diabetes UK and Member, Citizen Scientist Advisory Group. David was diagnosed with Type 1 diabetes in 1961 and has been involved with Diabetes UK and the North West (NW) Diabetes Research Network patient and public involvement (PPI) panel as a patient and service user representative for many years. More recently David has joined the grant application panel which assess funding applications to Diabetes UK.

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Bayley ~ Colin

Member, Citizen Scientist Advisory Group.

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Chaproniere ~ Roger

Citizen Science Public Advisory Group Member. Roger is a retired member of the Salford community. He spent many years working in the emergency ambulance services and now divides his time as the communications officer for the Citizen Scienctist Project, his love of astronomy and his family and the church.

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Flynn ~ Jackie

Chair, Citizen Scientist Advisory Group.

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Halliwell ~ Peter

Member, Citizen Scientist Advisory Group.

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Jury ~ Francine

Citizen Scientist Project Manager, Salford Royal NHS Foundation Trust. Francine is an experienced researcher having worked at the University of Manchester in the field of Genomics and Medical Research for 15 years. Her commitment to public understanding of and improved public access to clinical research led to her current role as the project manager for the Citizen Scientist Project.

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Kershner ~ Harold

Member, Citizen Scientist Advisory Group.

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Minor ~ Brian

Member, Citizen Scientist Advisory Group.

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Mumford ~ Terrence

Member, Citizen Scientist Advisory Group.

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