The development of PPI in musculoskeletal disease: The LMBRU experience

2012 Conference

Abstract: The Leeds Musculoskeletal Biomedical Research Unit (LMBRU) opened at Chapel Allerton Hospital in 2009, the first research unit within the Leeds Trust. Funded from the NIHR, the LMBRU translates musculoskeletal research into improving patient care.

The LMBRU PPI group started in early 2010 and covers a wide area of involvement: one of most successful initiatives is the ‘Meet the Researcher’ meetings, held every two months. Researchers discuss their research on musculoskeletal disease and answer questions. Meeting topics are shaped by the group and patients are actively encouraged to develop potential topics with the researchers.

The patients’ viewpoint on the research we are doing and planning in the future is integral to successful research in the future. The group provide valuable and insightful feedback and are helping to positively change the researchers’ approach.

A high proportion of our members volunteer to be involved in our research projects, including as representatives on steering committees or giving feedback on patient information leaflets.

The LMBRU PPI Group consists of patients and members of the public interested in arthritis and research. Their enthusiasm, interest and appreciation are inspiring and we have been successful in creating integrated and visible patient and public involvement.