Patient and public involvement and minority ethnic groups in health and social care research: a systematic review
2014 Conference
Abstract: Involving patients and public in research has become important to health research, both in the UK and internationally. Researchers are encouraged to actively involve patients and the public in the research process. Recently, there has been an increase in the number of publications on the impact of patient and public involvement (PPI) in health research. However, there is very little research looking at the involvement of minority ethnic groups. This paper will present the research findings from a review of literature, focusing on the involvement of minority ethnic groups in health and social care research from an international perspective. This PhD is funded by the National Institute for Health Research (NIHR) Greater Manchester Primary Care Patient Safety Translational Research Centre. This Centre has an existing Research User Group (RUG), made up of 12 patients, carers and service users. Four RUG members were involved in reviewing the protocol. They received an informal educational session on what a systematic review is, the processes involved and, advantages and disadvantages of conducting a systematic review.
In this poster, we will present:
- A definition(s) of PPI from an international perspective
- Methods of recruitment (eg advertising online, newspapers, communitycentres) and involvement (eg telephone, face-to-face, email, online forum)
- Levels of PPI (eg consultation, collaboration) and stages of involvement (identifying and prioritising research topics, research design and management, data collection)
- Types of people involved in research (eg adults, ethnicity)
- Health topic focus (eg patient safety/conditions including diabetes, arthritis, kidney disease)
- Reported barriers and enablers to involvement.
Authors
Campbell ~ Stephen
Stephen Campbell is Professor of Primary Care Research at the Centre for Primary Care in the Institute of Population Health at the University of Manchester. He is also Centre Director of the National Institute for Health Research (NIHR) funded Greater Manchester Primary Care Patient Safety Translational Research Centre (GM PSTRC).
View all articles by this authorCheraghi-Sohi ~ Sudeh
Sudeh Cheraghi-Sohi is a Health Services Researcher within the General Practice Research Theme of the National Institute for Health Research (NIHR) funded Greater Manchester Primary Care Patient Safety Translational Research Centre (GM PSTRC). Her current research interests are around patient safety in General Practice and Patient and Public Involvement in health research.
View all articles by this authorDawson ~ Shoba
Shoba Dawson is a first year PhD student within the National Institute for Health Research (NIHR) funded Greater Manchester Patient Safety Translational Research Centre. Her PhD is titled “Patient and Public Involvement in Patient Safety: Black Minority Ethnic Groups”. Her current interests include: patient and public involvement, patient safety and behaviour change interventions.
View all articles by this authorGiles ~ Sally
Sally Giles is a health services researcher at the National Institute for Health Research (NIHR) Manchester Primary Care Patient Safety Translational Research Centre, University of Manchester with both qualitative and quantitative research skills and experience. Over the last 12 years Sally has led and worked on a variety of research projects relating to quality and safety in the NHS. A main focus of her work has been patient involvement in patient safety, particularly in the design and development of patient safety interventions.
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