Archives: FAQ
What evidence is there to show that PPI is effective?
The following page contains stories, examples and evidence that are specific to the NIHR Clinical Research Network (NIHR CRN) that show the involvement of patients, carers and the public is making the difference in research. Please go to: www.crncc.nihr.ac.uk/ppi and see the ‘case studies’ box at the top right-hand side. INVOLVE also has information about the developing …
I am running a workshop on Public Involvement. Can I have copies of your publications to give out?
All of our publications are available to download from this website. We can send out small numbers in the post free of charge with at least 2 weeks notice. To request hard copies please email involve@nihr.ac.uk or telephone 02380 595628
I am looking for resources on public involvement in mental health research
Here are a selection of some of the resources that might be helpful : The voluntary sector shared learning group has a website: Voluntary sector shared learning group: facilitator is Bec Hanley: bec@twocanassociates.co.uk http://www.user-involvement.org.uk/ Guidance documents and articles : The Ethics of survivor research – Alison Faulkner https://www.jrf.org.uk/report/ethics-survivor-research-guidelines-ethical-conduct-research-carried-out-mental-health A series of case studies …
How can I get involved as a lay member?
INVOLVE has information on being involved here:www.invo.org.uk/find-out-more/getting-involved People in Research also has information for members of the public who would like to be involved in research including a database of current opportunities. Please see the following link: www.peopleinresearch.org.
I’m applying for a NIHR Fellowship and I think the design of my research proposal would benefit substantially from PPI. Could you advise?
As a start you should contact your local Research Design Service funded by the National Institute for Health Research: http://www.rds.nihr.ac.uk/support-options/regional-centres/
I am working on a research proposal for which I would like patient and public involvement from the planning stage. Would it be possible to put me in contact with somebody who may be able to advise on this?
As a start you should contact your local Research Design Service funded by the National Institute for Health Research: http://www.rds.nihr.ac.uk/support-options/regional-centres/
How do I cost PPI in research projects?
The Mental Health Research Network and INVOLVE have developed a useful guide (budgeting for Involvement) that provides practical advice on how to budget for involving patients, carers and the public in research. You can use the cost calculator to work out the costs of involvement at any stage of the research process – whether that’s …
I am a researcher. Where can I find support for designing PPI involvement and funding for PPI at the research design stage?
The National Institute of Health Research (NIHR) Research Design Service supports researchers to develop and design high quality research proposals for submission to the NIHR and other national, peer-reviewed funding competitions for applied health or social care research. This support is provided free of charge. You can find your local RDS here: http://www.rds.nihr.ac.uk/ Information about …
I don’t understand all of the jargon – where can I find out what it all means?
The INVOLVE jargon buster, or glossary of words contains the definitions of some of the terms commonly used in public involvement in research. It is not a complete list of all the words you might come across. The definitions were developed for INVOLVE by TwoCan Associates working in consultation with a panel of researchers and a …
I have been asked to write a Plain English summary – how do I do this?
A plain English summary is a brief summary that has been written for members of the public and an interested audience rather than specialists. It should be written clearly and simply, without jargon and with an explanation of any technical terms that have to be included. Guidance on writing plain English summaries can be found …
Are there any resources on involving children and young people in research?
Several organisations are actively involving children and young people in research and have information and resources on their websites: The National Institute of Health Research (NIHR) Medicines for Children Research Network (MCRN) www.mcrn.org.uk/children/design National Children’s Bureau Research Centre (NCB). Includes information on a 2011 conference on young people’s involvement in research and projects involving children …
What is public involvement in research?
INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them. This includes, for example: working with research funders to prioritise research; offering advice as members of a project steering group; commenting on and developing research materials; undertaking interviews with research …
