Background: Patient/carer involvement in palliative care research has been reported as complex, difficult and less advanced compared to other areas of health and social care research. There is seemingly limited evidence on impact and effectiveness. Aim: To examine the evidence regarding patient/carer involvement in palliative care research and identify the facilitators, barriers, impacts and gaps …
The Patient and public involvement Intervention to enhance Recruitment and Retention in Surgical Trials (PIRRIST) project, led by Dr Joanna Crocker, recently launched its PPI guidance for Chief Investigators of surgical trials. This guidance is based on the findings of the four-stage PIRRIST project, feedback from surgical trial staff and PPI contributors at dissemination events …
A survey has been developed to capture service users’ perspective on the Research Design Service (RDS) when applying for NIHR funding opportunities. It aims to provide a national picture of RDS through its users’ feedback on how they felt that their needs were either met or unmet. Subsequently, by monitoring changes in trends of user satisfaction, …
Have you ever left a comment about your doctor on a physician rating website? It’s likely gone unread. It’s possible your doctor either doesn’t know the site exists or isn’t interested. That’s the conclusion of a recently released study in the Journal of Health Services Research & Policy that surveyed 1,001 registered doctors in primary and secondary …
When researchers invite people to take part in research (sometimes called clinical trials) to test treatments they need to make sure that these people understand what the research is all about and that they are in agreement about taking part. The research team will provide information and have a discussion with the patient. We call …
We are delighted to have been asked by BMJ and Royal Society of Medicine to deliver a co-production workshop in London on 16th May 2019 as a part of an event Research Co-production: What is it and how do you do it. This is a great opportunity to raise awareness and understanding of our guidance …
‘Social Research with children and young people – A practical guide’ is a new book written by Louca-Mai Brady and Berni Graham. Capturing the views and experiences of children and young people directly and involving them more actively in the research process are increasingly seen as essential for good research, evaluation, policy and service development. …
We are excited to advise you of the second #How2CoPro event! Last year it was such a success that it is back again on 12th March 2019. The key aim for the event is to share experiences, and provide practical examples, of how power can be shared in a co-produced project. You will also be …
The exciting new Learning for Involvement website is now live here learningforinvolvement.org.uk Learning for Involvement is a single searchable site where details of training opportunities and learning resources can be found with the ability to share and access resources developed by others. A resource for members of the public, researchers and public involvement leads. Some …
Do you have the skills to set the direction of public, patient and stakeholder engagement in clinical research? Do you have proven experience of developing and implementing engagement strategies with a diverse range of stakeholders, patient groups and charities? Are you passionate about providing patients and the public a voice in research? If this is …
A webinar for anyone interested in developing their own or others skills, knowledge and effectiveness in public involvement in research. Join us to hear about the latest developments and the discussions about: A new INVOLVE website on training, learning and development A new interactive online course for reviewers How the Training Sharebank model is being …
Westminster Health Forum announce details of forthcoming event on Wednesday 13th March 2019. The future for health research in England – funding, regulation and next steps for policy. To book your place and read the full details click here.
