Read the document here.

See the guidance here.

Please can you help with a survey of patient and public involvement (PPI) in randomised clinical trials. This work is being co-ordinated by a PhD student at University College London alongside a wider group of researchers, doctors, patients and public individuals from the United Kingdom involved in clinical trials around the world. This survey is for patients and members of the public, and there is the chance to enter a prize draw to win one of ten vouchers worth £50 each for those who complete this survey.

Complete survey here

This masterclass is aimed at researchers who want to learn more about involving children and young people in their research.

Monday March 9th 2020.

Time: 10am – 4pm.

Venue: St. George’s, University of London. SW17 0RE

• Fee £80

Due to high demand, booking is essential to attend this event

Book now at store.kingston.ac.uk

For further information and booking see here

Also, see flyer with more details here

Background: Patient/carer involvement in palliative care research has been reported as complex, difficult and less advanced compared
to other areas of health and social care research. There is seemingly limited evidence on impact and effectiveness.
Aim: To examine the evidence regarding patient/carer involvement in palliative care research and identify the facilitators, barriers,
impacts and gaps in the evidence base.
Design: Qualitative evidence synthesis using an integrative review approach and thematic analysis.
Data sources: Electronic databases were searched up to March 2018. Additional methods included searching websites and ongoing/
unpublished studies, author searching and contacting experts. Eligibility criteria were based on the SPICE (Setting, Perspective,
Intervention, Comparison, Evaluation) framework. Two quality assessments on methodology and involvement were undertaken.
Results: A total of 93 records were included. Eight main themes were identified, mainly concerning facilitators and barriers to effective
patient and carer involvement in palliative care research: definitions/roles, values/principles, organisations/culture, training/
support, networking/groups, perspectives/diversity, relationships/communication and emotions/impact. Evidence on the impact of
involvement was limited, but when carried out effectively, involvement brought positive benefits for all concerned, improving the
relevance and quality of research. Evidence gaps were found in non-cancer populations and collaborative/user-led involvement.
Conclusion: Evidence identified suggests that involvement in palliative care research is challenging, but not dissimilar to that
elsewhere. The facilitators and barriers identified relate mainly to the conduct of researchers at an individual level; in particular,
there exists a reluctance among professionals to undertake involvement, and myths still perpetuate that patients/carers do not want
to be involved. A developed infrastructure, more involvement-friendly organisational cultures and a strengthening of the evidence
base would also be beneficial.

Read the complete review HERE.

The Patient and public involvement Intervention to enhance Recruitment and Retention in Surgical Trials (PIRRIST) project, led by Dr Joanna Crocker, recently launched its PPI guidance for Chief Investigators of surgical trials.

This guidance is based on the findings of the four-stage PIRRIST project, feedback from surgical trial staff and PPI contributors at dissemination events across the UK, and consultation and user testing with a wide range of potential users.

Although it was developed for UK-based surgical trials, it is applicable to any type of UK-based clinical trial.

The guidance is free and available to download from the project website: www.phc.ox.ac.uk/pirrist

Have you ever left a comment about your doctor on a physician rating website? It’s likely gone unread.

It’s possible your doctor either doesn’t know the site exists or isn’t interested.

That’s the conclusion of a recently released study in the Journal of Health Services Research & Policy that surveyed 1,001 registered doctors in primary and secondary care and 749 nurses and midwives in the United Kingdom. Researchers examined the experience and attitude that physicians and nurse had toward websites that allow patient feedback. They found that about 27 percent of doctors and 21 percent of nurses were aware of feedback about them as an individual specifically.

“We saw a lack of awareness from healthcare professionals of when feedback had been left about the care they delivered, whether as an individual or team,” said Helen Atherton, one of the authors of the study and an associate professor in primary care research at England’s Warwick Medical School. “Overall, awareness and use by doctors is low.”

Doctors, especially general practitioners, also are more likely to feel negatively about online feedback than nurses, researchers found.  Read the news article here.

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