Help researchers determine what aspects of informed consent to trials matter most to patients.

When researchers invite people to take part in research (sometimes called clinical trials) to test treatments  they need to make sure that these people understand what the research is all about and that they are in agreement about taking part.  The research team will provide information and have a discussion with the patient. We call this process informed consent.

In order to make sure informed consent is done in the best way for participants we sometimes do research about how we deal with informed consent. For example, we might test whether a short version of a information sheet is better than a longer version, or whether information presented on a webpage is better than on paper. When we do research to test how effective our  informed consent processes are we want to look at the outcomes of that process, for example, how well the information was understood.

We want patients and their advocates views on which outcomes about informed consent are important to people and patients so we are carrying out a survey. You don’t need any previous experience of research to take part.  We just want you to consider which outcomes about informed consent are the most important to determine if it has been done well.

If you are happy to contribute to this study you can find the first questionnaire at this link or you can contact Katie Gillies ( for further information.  The questionnaire takes no more than 10 minutes to complete.