PPI member videos showing how their input has shaped the C-CHANGE project.

The C-CHANGE project is looking at improving patient and carer palliative healthcare by better understanding their needs and complexities. Once we understand the range of needs for palliative care patients and families, we can better match resources to individual care. The project is called C-CHANGE and is led by Prof Fliss Murtagh at the Cicely Saunders Institute, Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care.

As part of a research project we’ve done at the CSI, we have created some videos with PPI members, to show how their PPI input has shaped the course of the project.

  • The C-CHANGE research project: A Carer’s Experience – How can we improve coordination of care? Watch video here.
  • The C-CHANGE project: A Carer’s Experience – Supporting families when the news is difficult. Watch video here.
  • The C-CHANGE research project: A Carer’s Experience – Bereavement care. Watch video here.
  • How are patients’ needs supported by C-CHANGE? Watch video here.
  • Patient and Public Involvement impact on developing study questionnaires. Watch video here.
  • How the C-CHANGE project will respond to patient distress. Watch video here.