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INVOLVE 2018-2019

Co Production

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INVOLVE Executive Group

News and events

INVOLVE Staff

INVOLVE Members

Charity Involvement Directory

INVOLVE Associate members

Forum

Good practice for payment and recognition – things to consider

Benefits Advice Service for involvement for members of the public

Payment resources

Tax and National Insurance

Benefits Advice Service for involvement for NIHR organisations

ALPHA – a young people’s research advisory group

BRIGHTLIGHT study

‘If you build it they will come’

Involving children and young people in research: not the usual suspects

Involving young people in the design and delivery of health research

Involving young people through film and animation

Lessons from involving children and young people in service improvement

NIHR/Wellcome Trust Clinical Research Facility Cambridge Children’s Non-Executive Research Board

YPAG: The Young Persons’ Advisory Group

Thank you

Links

Thank you

Add your link

ALPHA – a young people’s research advisory group

Involving young people in the design and delivery of health research

Welcome to INVOLVE

YPAG: The Young Persons’ Advisory Group

Putting the horse before the cart: an agenda for public engagement

‘If you build it they will come’

Using social media for public involvement in research

INVOLVE conference 2014

The NIHR School for Social Care Research and user involvement

Lessons from involving children and young people in service improvement

BRIGHTLIGHT study

Our work

Sharebank

Diversity and Inclusion

Learning and Development

International working

Co production

Standards

Reaching Out

Involving children and young people

Resources for involving children and young people in research

References on involving children and young people in research

Articles about involving and engaging children and young people

The National Young People’s Mental Health Advisory Group

Involving children and young people in research: not the usual suspects

Review tunes into future priorities

NIHR/Wellcome Trust Clinical Research Facility Cambridge Children’s Non-Executive Research Board

Involving ‘seldom heard’ groups in HIV research

Involving young people through film and animation

Frequently asked questions

This is my story

Learning to listen at Parkinson’s UK

Welcome to the Autumn 2014 Newsletter

Welcome to the Autumn 2014 Newsletter

What I wish I’d known before going into public involvement research

The NIHR-wide learning and development group – a member’s view

Planting the public involvement seed early in researchers’ careers

Building Research Partnerships

Working together to develop public involvement training

Learning and development for public involvement: a personal reflection

The National Institute for Health Research (NIHR) strategic review of public involvement in research

Plain English summaries in National Institute for Health Research (NIHR) funded research

Parents advising researchers: Experiences from the ‘Beating Anxiety Together’ study

The changing face of public involvement in research teams

Inspiring involvement in research

Welcome to the Spring 2014 Newsletter

Around the table: Maryrose Tarpey

Around the table: Maryrose Tarpey

Around the table: Patricia Wilson

Around the table: Kati Turner

Around the table: Sophie Staniszewska

Around the table: Diana Rose

Around the table: Andrew Gibson

Around the table: Jonathan Boote

Criteria for inclusion

Around the table: Rosemary Barber

Criteria for inclusion

You’ve done the research – now what?

Merging worlds – the importance of support roles for patient and public involvement (PPI)

SCIE: Talking and walking co-production

Optimising adult mental health service configurations across health and social care

Webinars: an insider’s view

Exploring the impact of public involvement in research: examples

Public involvement/ participation/ engagement in research

The lived experience of co-producing research

Launch of the Public Involvement Impact Assessment Framework

Clinical Research Ambassador Group

The Tourettes Listening Project

EQUIP: Building the skills of service users and carers to become involved in research

STOP Diabetes study

PPI in research – passing the town hall meeting test

Budgeting for involvement

Beyond the usual suspects, towards inclusive user involvement

Involving patients and the public in the work of the Medical Research Council Clinical Trials Unit

Public involvement in clinical trials

Public involvement and the REF ‘impact’ agenda: squaring the circle?

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What’s the evidence for? A critical reflection on the evidence base for public involvement in research

Patient involvement in setting research priorities in the Netherlands

University of Western Australia Consumer and Community Participation Program

The Center for Evidence-based Policy at Oregon Health & Science University: Working to engage US patients and stakeholders in health research

Patient and health consumer involvement at ZonMw

The Center for Evidence-based Policy at Oregon Health & Science University: Working to engage US patients and stakeholders in health research

BPSU PPI Guidance for Researchers

The road towards PPI in research in Denmark

Newsletter Spring 2013 invoDIRECT

Welcome …..

All Trials Registered, All Results Reported

Mentoring service user researchers

Involving women with gestational diabetes

Putting research on everyone’s agenda

INVOLVE 2012 Conference – Facts and figures

Putting research on everyone's agenda

The PEOPPLE project

Supporting PPI in paediatric research

Supplements to resource for researchers

Resource for researchers case studies

Search help: Evidence library and Putting it into practice

invoNET 2012

Search help: Research project database

Welcome to the INVOLVE Autumn 2012 Newsletter

Becoming ‘them’ and remaining ‘us’ … or the road to ruin?

Community Researchers

Is there another ‘P’ to consider in relation to longitudinal birth cohort studies?

Involving people with communication disability in participatory research: the Friendship and Aphasia project

Resource for researchers templates

Developing training and support for public involvement in research

The Past Caring Project: a carer-led narrative research project about carer bereavement

International Collaboration on Participatory Health Research

The VIPER Project: involving young disabled people in research

Putting our strategy into practice

About this resource

Acknowledgements and contributors

About this resource

Developing training and support case studies

Training case study one

Issues to think about before you start – support

Training case study two

Training case study three

Training case study four

Training case study five

Training case study six

Training case study seven

Training case study eight

Training case study nine

Training case study ten

Training case study 11

Training case study 12

Training case study 13

Training case study 14

Training case study 15

Training case study 16

Training case study 17

Support for peer interviewers

Issues to think about before you start – training

Training for peer interviewers

Issues to think about before you start – training

What is a peer interviewer?

Issues to think about before you start – support

Support for public reviewers

Issues to think about before you start – training

Training for public reviewers

What is a public reviewer?

Training for steering group members

Training for steering group members

Issues to think about before you start – training

Support for steering group members

Issues to think about before you start – support

What is a steering group?

Support for advisory group members

Support for advisory group members

Issues to think about before you start – support

Issues to think about before you start – training

What is a project advisory group?

Issues to think about before you start – support

Training for advisory group members

Support for research panel members

Issues to think about before you start – training

Training for research panel members

What is a research panel?

Budgeting for support

Issues to think about before you start – support

Different approaches to providing support

Different types of support

What are support needs?

Budgeting for training events or courses

Running training events or courses

Issues to think about before you start – training

Different methods of training

What should training for researchers cover?

What should training for members of the public cover?

Planning training – who benefits from training?

Involving patients and the public in talking about medical research

Consumers take the initiative in patient and public involvement (PPI) training

Top ten research priorities relating after stroke

The patient inside and ‘outside’ the committee

The patient inside and 'outside' the committee

Bringing our strategy to life

Case study seven

noticeboard

Improving musculoskeletal research in North Bristol through public participation

Making sense of study steering groups: the Approach study

Patient involvement in combating sight problems

Making sense of study steering groups: the Approach study

A patient safety study: reflections

Bridging the gap

Interesting articles and publications

INVOLVE Coordinating Centre news

Interesting articles and publications

Not if, but when

INVOLVE Coordinating Centre news

Briefing notes: References

Case study three

Case study four

Briefing note eight: Getting started

Template one: Terms of reference

Briefing note seven: User controlled research

Briefing note seven: Collaboration

Briefing note seven: Consultation

Briefing note five: Document and record public involvement

Briefing note five: Clarify organisational responsibilities

Briefing note five: Offer training and support

Briefing note five: Resource public involvement in research

Briefing note five: Be accessible

Briefing note five: Be clear with the people you want to involve

Template two: Role description

Briefing notes authors

Briefing notes acknowledgements

Briefing note five: Involve people as early as possible

Test case study2

Sitemap

Search help

Email Alerts

Email Alerts 2

Test case study

Help

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About INVOLVE

How we work with others

INVOLVE documents

People at INVOLVE

Vision and Mission

INVOLVE vacancies

Find out more

What is public involvement in research?

Public involvement in research video

How to get involved

This is my story – animation

How to involve people in research

PPI Feedback Guidance

Information for researchers

Research Design Service (RDS)

Information for research commissioners

Social media for active public involvement

Twitter chat ‘Social media for public involvement’

Follow up Storify

NIHR School for Social Care Research and INVOLVE webinar series

Webinar 1 – Get all sides of the story

Questions

Webinar 2 – Research with black and minority ethnic people using social care services

Webinar 3 – End of Life Care research methods and public involvement in end of life care research

Webinar 4 – User Controlled Research

User controlled research

Resources

Libraries

Evidence library

About the library

Submit a document

Putting it into practice

About the library

Submit a document

Library of research projects

About the database

Register to submit a project

Members area/login

Lost Password

Add New Project

Edit Project Details

Project Preview

Criteria for inclusion

INVOLVE publications library

Library of examples

Examples of patient and public involvement reported in the Research Excellence Framework 2014 impact case studies

Exploring public involvement in research funding applications

Examples of public involvement in studies funded by NIHR Evaluation, Trials and Studies Programmes

Examples of projects using social media for public involvement

Briefing notes for researchers

Case study test

Browse all

Payment and recognition for public involvement

Examples of Payments Policies

Developing a policy for payment and recognition

Involvement Cost Calculator

Involvement cost calculator – About this resource

Library Resource

Developing training and support

Learning and Development

Public reviewing with the National Institute for Health Research (NIHR)

What’s on this site

Get started

New to public involvement

Induction materials for researchers new to public involvement

Induction materials for research staff new to public involvement

Things to help

Find and share training

Learning needs and tools

What’s on this website

Top tips

Jargon buster

Payment for involvement

Plain English Summaries

What is a plain English summary?

Members of the advisory group reviewing plain English summaries

How to write a plain English summary

NIHR ‘make it clear’

NIHR ‘make it clear’

Resources

Plain English Information cards

How to write a plain English summary

Benefits advice service for involvement

Communities

invoDIRECT

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invoDIRECT organisations

Register Your Organisation

Criteria for inclusion on invoDIRECT

Guidance on completing invoDIRECT registration form

Our Community

About OurCommunity

Lost Password

People in Research

News

News items

INVOLVE Blog

INVOLVE newsletters

Contribute to the newsletter

INVOLVE Blog

‘make it clear’ campaign

What is a good quality plain English summary?

NIHR Implementation Group

What to include in a plain English summary

How to write a plain English summary

Support and resources

Events

INVOLVE Conference 2017

Posters

Plenary presentations

Previous INVOLVE conferences

2014 Conference

INVOLVE Conference 2012

INVOLVE Conference Gallery

Contact us

Website feedback form

Complaints

Keep in touch

Website development

Forgotten password

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Update your details

Keep in touch preference centre

‘make it clear’ campaign

Accessibility

Terms of use, privacy and cookies

My Clippings

Copyright

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Research project

Search the Evidence library

Submit a document

Developing a policy for payment and recognition

Executive Group

INVOLVE members

Associate Members

INVOLVE staff

Membership

Benefits Advice Service for involvement for members of the public

Benefits Advice Service for involvement for NIHR organisations

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What is public involvement in research? – if you are a member of the public interested to find out more there is information in resources for you. If you are a researcher look here to find out how to involve people in your research. We have many resources including briefing notes for researchers and libraries with references and examples

Find out more

Libraries

Briefing notes for researchers

Payment and recognition for public involvement

Developing training and support

Plain English Summaries

Jargon buster

Our work

Our work

An outline and update on our current projects and our strategic direction and plans for the future.

About us

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