Welcome to the fifth issue of our IN: Bulletin.

This bulletin looks at the Clinical Research Ambassador Group (CRAG) based at Birmingham Heartlands Hospital.

The public involvement standards produced here aim to provide people with clear, concise benchmarks for effective public involvement alongside indicators against which improvement can be monitored. They are intended to encourage approaches and behaviours which will support this: flexibility; partnership and collaboration; a learning culture; the sharing of good practice; effective communications.

The standards are the work of a Public Involvement Standards Development Partnership which brings together representatives including public contributors from the Chief Scientist Office (Scotland), Health and Care Research Wales, the Public Health Agency (Northern Ireland) and the National Institute for Health Research (England).

Pages: 20

The public involvement standards produced here aim to provide people with clear, concise benchmarks for effective public involvement alongside indicators against which improvement can be monitored. They are intended to encourage approaches and behaviours which will support this: flexibility; partnership and collaboration; a learning culture; the sharing of good practice; effective communications.

The standards are the work of a Public Involvement Standards Development Partnership which brings together representatives including public contributors from the Chief Scientist Office (Scotland), Health and Care Research Wales, the Public Health Agency (Northern Ireland) and the National Institute for Health Research (England).

This is the greyscale version.

Pages: 18

The public involvement standards produced here aim to provide people with clear, concise benchmarks for effective public involvement alongside indicators against which improvement can be monitored. They are intended to encourage approaches and behaviours which will support this: flexibility; partnership and collaboration; a learning culture; the sharing of good practice; effective communications.

The standards are the work of a Public Involvement Standards Development Partnership which brings together representatives including public contributors from the Chief Scientist Office (Scotland), Health and Care Research Wales, the Public Health Agency (Northern Ireland) and the National Institute for Health Research (England).

This is the easy read version.

Pages: 16

Co-producing a research project is an approach in which researchers, practitioners and the public work together, sharing power and responsibility from the start to the end of the project, including the generation of knowledge.

This guidance is a first step in moving toward clarity about what we mean by co-producing a research project. It explains the key principles and features of co-producing a research project and suggests ways to realise the principles and key features. Finally, the guidance outlines some of the key challenges that will need addressing, in further work, to aid those intending to take the co-producing research route.

Pages: 20

Welcome to the fourth issue of our IN: Bulletin.

This bulletin looks at the Health of adults who have a learning disability

Welcome to the third issue of our IN: Bulletin.

This bulletin looks at how Ruth got involved with health research and how she perceives the journey.

Welcome to the second issue of our new IN: Bulletin.

This bulletin looks at the involvement experiences of Fred and Dave who have been involved in different ways alongside Lead Researcher Shireen Patel from CLAHRC East Midlands.

Welcome to the first issue of our new IN: Bulletin.

The IN Bulletin provides an opportunity to share journeys in public involvement.  For public members and researchers or staff to show what is really needed in terms of support and resource alongside the impacts for all parties.  Future IN bulletins will showcase public reviewers, researchers working in challenging areas, service users who have travelled to become service user researchers.

We hope you will enjoy hearing personal accounts of public involvement, the differences made and if you have a journey to share please contact us.

In November 2016  INVOLVE hosted a national meeting of public involvement leads from across the National Institute for Health Research (NIHR), Academic Health Science Networks (AHSNs), and Medical Research Charities.

The aim of the meeting was to bring together staff in public involvement posts in key research organisations to:

• Update: national strategy for NIHR & Public Involvement,
  INVOLVE and work programmes supporting delivery of Going the Extra Mile Recommendations.
• Identify: the learning and development needs, career pathways, and skill sets of public involvement Leads
• Shape: NIHR Public Involvement Standards and indicators
• Network: with colleagues and support collaboration.

Over 100 public involvement leads and people in other similar roles participated in the day, and there was high demand for places. A list of those attending can be found here. This was the second time a meeting has been held; the first being in July 2014 with approximately half of participants being present at this first meeting.

Pages 26

An introductory guide for members of the public who are considering active involvement in NHS, public health or social care research.

20 pages

Please note that benefits guidance and tax legislation been subject to considerable change/reinterpretation since 2019. Any INVOLVE documents referring to the payment of involvement fees may now be out of date and are pending a review during 2020. INVOLVE’s guidance should not be substituted for professional advice, and INVOLVE accepts no liability for decisions or actions taken as a result of its guidance. You are always recommended to take your own tax, finance or legal advice.