This jargon buster or glossary of words contains the definitions of some of the terms commonly used in public involvement in research. It is not a complete list of all the words you might come across. The original definitions were developed for INVOLVE by TwoCan Associates working in consultation with a panel of researchers and a panel of people who use services, and we add to them continually.
The jargon buster can be searched by clicking on one of the letters below or browsing all terms.
An independent statutory body that was responsible for Section 251 of the NHS Act 2006 in England and Wales; and reviewed applications for use of identifiable data where consent was not practicable. From April 2013 this function will transfer to the Health Research Authority (HRA) who will convene a Confidentiality Advisory Group (CAG) to perform this function.
The National Research Ethics Service (NRES) is the core function of the Health Research Authority (HRA) and provides help and leadership for NHS Research Ethics Committees (RECs) by co-ordinating the development of operational and infrastructure arrangements in support of their work.
The UK national body that advises on screening programmes within the NHS. The National Screening Committee is an important policy customer of the NETS programmes.
National Cancer Research Network
We are needs-led because we assess the important questions and the priority they should be answered in. We actively ensure that our programmes meet the needs of decision makers. We ensure that we are needs-led throughout the funding pipeline, by actively assessing need and priority for all funding streams.
NIHR Evaluation, Trials and Studies Coordinating Centre
NIHR Evaluation, Trials and Studies programmes; a suite of NIHR programmes funding clinical trials and other studies relevant to the NHS and public health.
National Health Service
NHS Economic Evaluation Database
NHS Permission for research (formerly known as R&D Approval) confirms that appropriate checks have been made and that clinical negligence will be covered by NHS indemnity schemes or by independent contractors’ professional indemnity insurance during the course of the research. In addition, where the staff of an NHS organisation were responsible for designing the study, NHS permission confirms that indemnity is provided for harm arising from the design of the study.
NHS permission for research ensures that:
a) The organisation is aware of the potential impact of the research in terms of risks and resources.
b) The organisation has made the necessary arrangements to support the activity.
c) All the activities for which the organisation is responsible are compliant with the law.
d) The organisation accepts vicarious liability for the activities of staff for which it is responsible.
Letter confirming that NHS Permission has been given and the study can commence. Similar terms are used for the permission letter issued in other UK countries.
The responsible person / team acting on behalf of the organisation in matters relating to R&D management. The NHS R&D Office may delegate some of its functions to other parties.
NB. Where a trial is run without NHS involvement, the term NHS R&D office may often be replaced with the term ‘sponsor’s office’.
NHS research is research carried out in the NHS or funded by the NHS. This includes research that takes place in local hospitals or GP surgeries, and larger studies commissioned by the NHS at a national level, for example:• a study based in a GP surgery looking at people’s experience of long-term chronic pain• a randomised controlled trial to look at the best treatment for people with bowel cancer.
The National Institute for Health and Clinical Excellence recommends which treatments should be provided by the NHS. NICE makes extensive use of evidence generated by the NETS programmes.
National Information Governance Board for Health and Social Care Ethics and Confidentiality Committee (NIGB HSC ECC): formerly PIAG, gives approval for projects using patient data without obtaining consent
The National Institute for Health Research was established in 2006 to provide the framework through which the Department of Health can position, maintain and manage the research, research staff and research infrastructure of the NHS in England as a national research facility.
National Institute for Health Research Clinical Research Network Coordinating Centre
National Institute of Health Research Information Systems
Non-Investigational Medicinal Product: product used alongside IMP but not directly under investigation in the research study, e.g. a challenge agent