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What is public involvement in research? – if you are a member of the public interested to find out more there is information in resources for you. If you are a researcher look here to find out how to involve people in your research. We have many resources including briefing notes for researchers and libraries with references and examples
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Interested in finding out about other organisations that support public involvement in your area? – visit invoDIRECT. People in Research is the place for you if you want to put up an opportunity for people to get involved in research or you want to find out what opportunities are available.
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Taking patient reported outcomes centre stage in cancer research – why has it taken so long?
Selby P and Velikova G.
Research Involvement and Engagement 4:25
Added: 08 January 2019
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Benefits of and barriers to involving users in medical device technology development and evaluation.
Shah, S. & Robinson, I.
International Journal of Technology Assessment in Health Care, 23(1), 131-137.
Added: 28 September 2010
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Patient and service user engagement in research: a systematic review and synthesised framework
Shippee, N., Garces, J., Lopez, G. et al.
Health Expectations doi: 10.1111/hex.12090. [Epub ahead of print]
Added: 28 October 2013
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Helping Others: Reasons for Participation in Service User Involvement Initiatives from the Perspective of Adolescents and Young Adults with Cancer.
Signe Hanghøj, Helle Pappot, Lisa Lyngsie Hjalgrim, Maiken Hjerming, Camilla Louise Visler, and Kirsten A. Boisen.
Journal of Adolescent and Young Adult OncologyAhead of Print doi.org/10.1089/jayao.2019.0014
Added: 30 July 2019
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Adding SUGAR: Service user and carer collaboration in mental health nursing research
Simpson, A., Jones, J., Barlow, S., Cox, L. and SUGAR
Journal of Psychosocial Nursing and Mental Health Services, 52(1), 22-30
Added: 10 June 2014
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How to develop a patient and carer advisory group in stroke care research
Sims, S., Brearly, S., Hewitt, G., Greendwood, N., Jones, F., Ross, F. & Harris, R.
Nurse Researcher 20(3) 6-11
Added: 08 May 2013
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The contribution of advisory committees and public involvement to large studies: case study
Slade, M., Bird, V., Chandler, R., Fox, J., Larsen, M.
BMC Health Services Research, 10, 323.
Added: 26 March 2012
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Defining and evaluating novel procedures for involving patients in Core Outcome Set research: creating a meaningful long list of candidate outcome domains.
Smith H, Horobin A, Fackrell K, Colley V, Thacker B, Hall D and for the Core Outcome Measures in Tinnitus (COMiT) initiative
Research Involvement and Engagement 4:8
Added: 05 November 2018
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Identifying palliative and end-of-life care research priorities: a UK approach to consult end users
Smith R; Best S; Noble B
European Journal of Palliative Care 22, 3, 114-117
Added: 20 September 2018
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User involvement in the design and undertaking of nursing, midwifery and health visiting research.
Smith, E., Manthorpe, J., Brearley, S., Ross, F., Donovan, S., Sitzia, J. & Beresford, P.
London: National Co-ordinating Centre for NHS Service Delivery and Organisation (NCCSDO).
Added: 20 February 2007
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Resources
Resources
What is public involvement in research? – if you are a member of the public interested to find out more there is information in resources for you. If you are a researcher look here to find out how to involve people in your research. We have many resources including briefing notes for researchers and libraries with references and examples
Find out more
Libraries
Briefing notes for researchers
Payment and recognition for public involvement
Developing training and support
Plain English Summaries
Jargon buster
Current work
Current work
An outline and update on our current projects and our strategic direction and plans for the future.
News
News
Find out the latest news on public involvement in research, sign up to receive regular email alerts and read our quarterly newsletter.
News items
INVOLVE newsletters
Communities
Charity Involvement Directory
Communities
Interested in finding out about other organisations that support public involvement in your area? – visit invoDIRECT. People in Research is the place for you if you want to put up an opportunity for people to get involved in research or you want to find out what opportunities are available.
invoDIRECT
People in Research
Events
Events
INVOLVE Conference 2017
About us
FAQ
Contact us
About us
FAQ
Contact us
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