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Defining and evaluating novel procedures for involving patients in Core Outcome Set research: creating a meaningful long list of candidate outcome domains.

Smith H, Horobin A, Fackrell K, Colley V, Thacker B, Hall D and for the Core Outcome Measures in Tinnitus (COMiT) initiative
Research Involvement and Engagement 4:8
Added: 05 November 2018

Identifying palliative and end-of-life care research priorities: a UK approach to consult end users

Smith R; Best S; Noble B
European Journal of Palliative Care 22, 3, 114-117
Added: 20 September 2018

User involvement in the design and undertaking of nursing, midwifery and health visiting research.

Smith, E., Manthorpe, J., Brearley, S., Ross, F., Donovan, S., Sitzia, J. & Beresford, P.
London: National Co-ordinating Centre for NHS Service Delivery and Organisation (NCCSDO).
Added: 20 February 2007

Service user involvement in nursing, midwifery and health visiting research: A review of evidence and practice.

Smith, E., Ross, F., Donovan, S., Manthorpe, J., Brearley, S., Sitzia, J. & Beresford, P.
International Journal of Nursing Studies, 45(2), 298-315.
Added: 28 January 2009

Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: A modified Delphi study

Snape, D., Kirkham, J., Britten, N., Gradinger, F., Looban, F., Popay, J., Wyatt, K. and Jacoby, A.
BMJ Open, 4:e004943
Added: 14 October 2014

Exploring areas of consensus and conflict around values underpinning public involvement in health and social care research: a modified Delphi study

Snape, D., Kirkham, J., Preston, J., Popay, J., Britten, N., Froggatt, K., Gibson, A., Lobban, F., Wyatt, K. and Jacoby, A.
BMJ Open, 4, e004217
Added: 28 October 2014

Missed opportunities for impact in patient and carer involvement: a mixed methods case study of research priority setting

Snow R; Crocker J C; Crowe S
Research Involvement and Engagement 1, 1,
Added: 20 September 2018

Involving patients and the public in research.

Sonja Marjanovic, Amelia Harshfield, Asha Carpenter, Adam Bertscher, Daniel Punch, Sarah Ball.
RAND Europe on behalf of The Healthcare Improvement Studies Institute, University of Cambridge, UK.
Added: 09 December 2019

The development and initial validation of a questionnaire to measure help-seeking behaviour in patients with new onset rheumatoid arthritis

Stack,R., Mallen, C., Deighton, C., Kiely, P., Shaw, K., Booth, A., Kumar, K., Thomas, S., Rowan, I., Horne, R., Nightingale, P., Herron-Marx, S., Jinks, C., DELAY Study Syndicate, Raza, K.
Health Expectations doi: 10.1111/hex.12203. [Epub ahead of print]
Added: 15 July 2014