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A qualitative evaluation of influential factors in promoting successful involvement of consumers in research.

Retrospective study of a research project which successfully involved consumers. Participants were interviewed (consumers, researchers, commissioners), documents analysed. Data was analysed to extract key themes which influenced project's success.

Author: Rosemary Telford - School of Health and Related Research (ScHARR) and Community Health Sheffield NHS Trust (CHS)

Tel: 0114 222 0754/222 0776. Email: r.telford@sheffield.ac.uk

A qualitative exploration of decisional role preference and priority information needs in patients with lung cancer.

The study will explore lung cancer patients' preferences regarding participation in treatment decision making. It will also seek to identify those areas in which patients are most desirous of receiving information regarding their lung cancer. An Information Needs Questionnaire for use in future quantitative work (after Degner et al 1998) will be developed as a result of the data collected and the transferability of a set of sort cards originally designed for use with breast cancer patients (Degner et al 1997) will be assessed.

Author: Ann-Louise Caress - School of Nursing, Midwifery and Health Visiting, University of Manchester

Tel: 0161 275 5307/5346. Email: ann.caress@man.ac.uk

A qualitative study to explore positive and negative aspects of long-term care settings as experienced by residents with dementia, their family and statutory carers.

The research topic was identified by applicant steming directly from own experiences of caring for husband - a GP who developed Alzheimer's 15 years ago in his 50's - now in long term care. Semi-structured interviews with family members, paid staff and people with dementia in 10 different care settings: residential, specialist nursing and generic as in NHS, local authority and private sectors in inner London and suburban Essex. N=68. Interviews taped, transcribed, analysed, first by hand, then entered on NUD*ist database to assist in indexing data under themes.

Author: Shirley Nurock

Email: s_nurock@hotmail.com

A randomised controlled trial of the effectiveness of an educational package in reducing baby walker use

This is a cluster randomised controlled trial where GP practices have been randomised to either intervention or control. The midwives are recruiting pregnant women to the trial in both arms at 28 weeks. In the intervention arm, the women receive extra information about baby walkers from the midwife antenatally and the health visitor at the birth visit and 3-4 month check. Those in the control arm receive normal care. Data on safety in the home and views/ attitudes to baby walkers is collected at recruitment and when the baby is 9 months old.

Author: Denise Kendrick - University of Nottingham

Tel: 0115 846 6924. Email: denise.kendrick@nottingham.ac.uk

A randomised controlled trial to evaluate the benefit of a new information leaflet for parents of children hospitalised with benign febrile convulsion.

The parents will be recruited in hospital prior to childs' discharge. One group of parents (60) will receive a new leaflet. The other group of parents (60) will receive the previous written information provided. All parents will complete an anxiety questionnaire before discharge. They will then be interviewed 14 days later - 'follow up anxiety questionnaire' - and a behavioural knowledge and emotion questionnaire and satisfaction with information questionnaire.

Author: Fiona Paul - Tayside University Hospitals NHS Trust

Tel: 01382 633820. Email: fiona.paul@tuht.scot.nhs.uk

A Study Investigating People's Views of Mental Health Problems

This study is about attitudes to mental health problems and seeking help. If people choose to participate they will be presented with a brief text about mental health problems. They will then be asked a series of questions about mental health problems and seeking help. They do not need to have a mental health problem to participate. Participation is voluntary and they can withdraw at any time. At the end of the study they have the opportunity to enter a prize draw to win £50. This research is being conducted as part of a Doctorate in Clinical Psychology, in conjunction with the University of Exeter.

Author: Christina Rowe - University of Exeter

Email: cr321@exeter.ac.uk

A study to identify the research priorities of community midwives.

Community midwives from 8 Trusts in South London attended a priority setting meeting along with the research team (including the team's consumer rep). Priorities generated were then rated by 125 midwives and 23 consumers. These ratings, literature review and other work resulted a ranked list of priorities.

Author: Sarah Clement - St Georges Hospital Medical School

Tel: 020 8725 5515. Email: s.clement@sghms-ac.uk

A study to investigate patient satisfaction in relation to how the diagnosis of cancer is given

The research question was shaped with the user forum. A sub group of the forum then helped devise the questionnaire which was sent out to those involved in the self help groups represented on the forum. The results of the questionnaire were then fed back to two focus groups to develop guidelines based on the findings.

Author: Jo Cooke - Trent Focus, Institute of General Practice and Primary Care

Tel: 0114 2266730. Email: J.M.Cooke@Sheffield.ac.uk

A survey of breast cancer patients' views on entry into several clinical studies.

Ninety six patients who had undergone surgery for invasive breast cancer between January and June 2000 in a single Breast Unit were sent a questionnaire seeking their views on study participation, including whether there should be limits to the number they might wish to be involved in. Questionnaires were sent out with an explanatory letter and a self addressed envelope for replies. Each questionnaire consisted of nine questions requiring yes/no answers but where appropriate there was opportunity for patients to write their own comments. An analysis of responses was undertaken.

Author: Hazel Thornton - Independent advocate

Tel: 01206 728178. Email: hazelcagct@keme.co.uk

A User Focused Approach to Health Service Standards

Focus groups were facilitated by outsiders ( both of whom had experience of the client group), views were collated, standards produced from these, presented to the directorate and to the participants. Audit methods are being set up.

Author: Sybil Williams - Learning Disabilities Directorate Bro Morgannwg NHS Trust

Tel: 02920 573960. Email: sybil.williams@bromor-tr.wales.nhs.uk