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Patient and public involvement toolkit

Cartwright, J. and Crowe, S.
Chichester, BMJ Books ISBN 978-1-4051-9910-0
Added: 15 February 2012

Patient involvement in cardiovascular research: a qualitative impact evaluation.

Eva Vroonland, Inge Schalkers, Daphne Bloemkolk & Christine Dedding
Research Involvement and Engagement, 5: 29.
Added: 02 December 2019

Patient involvement in medical research: what patients and physicians learn from each other.

Young K, Kaminstein D, Olivos A, Burroughs C, Castillo-Lee C, Kullman J, McAlear C, Shaw DG, Sreih A, Casey G, Vasculitis Patient-Powered Research Network, Merkel PA.
Orphanet Journal of Rare Diseases, 14(1):21.
Added: 08 April 2019

Patient involvement in the development of a psychosocial cancer rehabilitation intervention: evaluation of a shared working group with patients and researchers.

Eva Rames Nissen, Vibeke Bregnballe, Mimi Yung Mehlsen, Anne Kathrine Østerby Muldbjerg, Maja O’Connor and Kirsten Elisabeth Lomborg.
Research Involvement and Engagement 4:24
Added: 08 January 2019

Patient participation as dialogue: setting research agendas.

Abma, T. & Broerse, J.
Health Expectations, 13(2), 160-173.
Added: 28 July 2010

Patient partner compensation in research and health care: the patient perspective on why and how.

Richards D, Jordan I, Strain K and Press Z.
Patient Experience Journal, 5(3): Article 2.
Added: 19 November 2018

Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.

Harrison JD, Auerbach AD, Anderson W, Fagan M, Carnie M, Hanson C, Banta J, Symczak G, Robinson E, Schnipper J, Wong C, Weiss R.
Health Expectations, doi: 10.1111/hex.12873. Epub ahead of print
Added: 18 March 2019

Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives.

Elberse, J., Caron-Flinterman, F. and Broerse, J.
Health Expectations. 2011 Sep;14(3):225-39.
Added: 17 January 2011

Patients and professionals as research partners: Challenges, practicalities and benefits.

Hewlett, S., de Wit, M., Richards, P., Quest E., Hughes, R., Heiberg, T., Kirwan, J.
Arthritis Care & Research, 55(4), 676-680.
Added: 20 February 2007

Patients as Research Partners; How to Value their Perceptions, Contribution and Labour?

Elise Smith, Jean-Christophe Bélisle-Pipon, David Resnik.
Citizen Science: Theory and Practice, 4(1):15.
Added: 09 April 2019