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Searching for: Articles published in 2018

Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement).

Gove D, Diaz-Ponce A, Georges J, Moniz-Cook E, Mountain G, Chattat R, Øksnebjerg L, European Working Group of People with Dementia.
Aging and Mental Health, 22(6):723-729.
Added: 18 January 2019

Involving young people in BRIGHTLIGHT from study inception to secondary data analysis: insights from 10 years of user involvement.

Rachel M. Taylor, Jeremy S. Whelan, Faith Gibson, Sue Morgan, Lorna A. Fern, on behalf of the BRIGHTLIGHT Team, Young Advisory Panel (YAP) and Core Consumer Group (CCG) and National Cancer Research Institute Teenage and Young Adult Clinical Studies Group (NCRI TYA CSG).
Research Involvement and Engagement 4:50
Added: 14 January 2019

“I was Excited by the Idea of a Project that Focuses on those Unasked Questions” Co‐Producing Disability Research with Disabled Young People.

Kirsty Liddiard, Katherine Runswick‐Cole, Dan Goodley, Sally Whitney, Emma Vogelmann, Lucy Watts MBE.
Children & Society Epub ahead of print.
Added: 14 January 2019

Guidance for Researchers: Feedback PATIENT and PUBLIC INVOLVEMENT (PPI): Feedback from Researchers to PPI Contributors.

Centre for Research in Public Health and Community Care (CRIPACC)
Hatfield: University of Hertfordshire.
Added: 10 January 2019

Evaluating Patient, Family and Public Engagement in Health Services Improvement and System Redesign.

Julia Abelson, Anya Humphrey, Ania Syrowatka, Julia Bidonde and Maria Judd.
Healthcare Quarterly Vol.21 Special Issue: 61-67.
Added: 10 January 2019

Involving minority ethnic communities and diverse experts by experience in dementia research: The Caregiving HOPE Study.

Parveen S, Barker S, Kaur R, Kerry F, Mitchell W, Happs A, Fry G, Morrison V, Fortinsky R, Oyebode JR.
Dementia,17(8):990-1000.
Added: 09 January 2019

Research with children and young people: not on them. What can we learn from the non-clinical research?

Helen M Roberts, Kristin Liabo.
Archives of Disease in Childhood EPub ahead of print.
Added: 09 January 2019

The challenge of inclusive coproduction: The importance of situated rituals and emotional inclusivity in the coproduction of health research projects.

Jenelle Clarke, Justin Waring and Stephen Timmons.
Social Policy and Administration EPub ahead of print.
Added: 09 January 2019

Evaluating patient and public involvement in research.

Antoine Boivin, Tessa Richards, Laura Forsythe, Alexandre Grégoire, Audrey L’Espérance, Julia Abelson, Kristin L Carman.
BMJ 2018;363:k5147
Added: 09 January 2019