Abstract: Patients, carers, health professionals, other stakeholders, and academic investigators increasingly work in partnership in research. This requires collaboration rooted in mutual respect, involvement of all participants, and good communication. Having conducted such partnered research over multiple projects, and having recently completed a project together funded by the Patient-Centered Outcomes Research Institute, we collaboratively developed a list of 12 lessons we have learned about how to ensure effective research partnerships.
To foster a culture of mutual respect, hold early in-person meetings, with introductions focused on motivation, offer appropriate orientation for everyone, and maintain awareness of individual and project goals.
To actively involve all team members, it is important to ensure sufficient funding for everyone's participation, to ask for and recognise diverse contributions, and to seek the input of quiet members.
To facilitate good communication, teams should carefully consider labels, avoid jargon and acronyms, judiciously use mixed and single stakeholder subgroups, and keep progress visible. In offering practical recommendations for action we hope to help foster more patient-centered research via productive and enjoyable research collaborations.
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Categories: journal article service users and carers researchers relevant to all service users general principles of good practice lessons from direct experience of involvement General guidance on involving the public in research
Date Entered: 2019/01/18
Date Edited: 2019/01/18