Putting it into Practice

Title: Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study.
Author: Mathie E, Wythe H, Munday D, Millac P, Rhodes G, Roberts N, Smeeton N, Poland F, Jones J.
Date Published: 2018
Reference: Health Expectations, 21(5):899-908.
Are service users or carers authors: Yes

Abstract: It is well-known that researchers do not often provide feedback to PPI contributors, thus preventing them from knowing whether their contributions have been useful. The aim of this study was to explore the type of feedback researchers give, and PPI contributors’ views on the feedback they receive. Researchers and PPI contributors from six PPI groups in England were asked to complete a survey and or took part in an interview on the topic of feedback. The results confirmed that researchers do not routinely give feedback to PPI contributors. The feedback that is given is sometimes simply an acknowledgement, sometimes reports on impact and sometimes reports on the study success and progress. PPI contributors who receive feedback are motivated for further involvement as it supports their learning and development. Giving feedback prompts researchers to reflect on the impact of PPI. PPI leads or coordinators play an important role in facilitating the process of providing feedback. The authors conclude that PPI feedback needs to become integral to the research process and can be seen as an indicator of mature, high quality PPI in research.

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Categories: journal article
service users and carers
researchers
relevant to all service users
general principles of good practice
lessons from direct experience of involvement

Date Entered: 2019/01/21

Date Edited: 2019/01/21

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