Evidence Library

Title: Engaging patients and caregivers in establishing research priorities for aortic dissection.
Author: Stefan Acosta, Christine Kumlien, Anna Forsberg, Johan Nilsson, Richard Ingemansson, Anders Gottsäter.
Date Published: 2019
Reference: SAGE Open Medicine, 7: 1-7.
Are service users or carers authors: No/Not Known

Abstract: The aim of this study was to establish the top 10 research uncertainties in aortic dissection together with the patient organization Aortic Dissection Association Scandinavia using the James Lind Alliance approach. Together with research priorities retrieved from five different current guidelines, 94 uncertainties were identified. A shortlist of 24 uncertainties remained after processing for the final workshop. The ranked final top 10 research uncertainties included diagnostic tests for aortic dissection; patient information and care continuity; quality of life; endovascular and medical treatment; surgical complications; rehabilitation; psychological consequences; self-care; and how to improve prognosis.

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Categories: health
Identifying topics, prioritising and commissioning
impact on research
impact of public involvement
journal article

Date Entered: 2019/01/29

Date Edited: 2019/01/29

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