Abstract: This article describes how the authors worked with people living with dementia to design an accessible Delphi survey. They were using the survey to involve people living with dementia in developing a core outcome set for clinical trials. (A core outcome set is a recommendation of 'what' should be measured and reported in all trials in a specific area.) The researchers consulted patients and carers through one-to-one and group sessions to ensure that all stakeholders could take part in the survey. The researchers reflect that this required considerable time and resource and the researchers’ expertise and support to ensure meaningful and productive involvement.
External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Click here
Related entry: none currently available
Categories: journal article researchers lessons from direct experience of involvement designing of research involving seldom heard groups
Date Entered: 2019/02/18
Date Edited: 2019/02/18