Evidence Library

Title: “Is all the stuff about neurons necessary?” The development of lay summaries to disseminate findings from the Newcastle Cognitive Function after Stroke (COGFAST) study
Author: Sarah Barnfield, Alison Clara Pitts, Raj Kalaria, Louise Allan,2and Ellen Tullo
Date Published: 2017
Reference: Research Involvement and Engagement, 3: 18.
Are service users or carers authors: No/Not Known

Abstract: Why did we do this study? It can be difficult for scientists to communicate their research findings to the public. This is partly due to the complexity of translating scientific language into words that the public understand. Further, it may be hard for the public to find out about and locate information about research studies. We aimed to adapt some scientific articles about the links between dementia and stroke into lay summaries to be displayed online for the general public. How did we do it? We collaborated with five people from a volunteer organisation, VOICENorth. They took part in two group discussions about studies reporting on the link between dementia and stroke, and selected four studies to translate into lay summaries and display on a website. We discussed the layout and language of the summaries and made adaptations to make them more understandable to the general public. What did we find? We were able to work with members of the public to translate research findings into lay summaries suitable for a general audience. We made changes to language and layout including the use of ‘question and answer’ style layouts, the addition of a reference list of scientific terms, and removing certain words. What does this mean? Working with members of the public is a realistic way to create resources that improve the accessibility of research findings to the wider public.

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Categories: health
Writing up and disseminating
impact on research
impact of public involvement
journal article

Date Entered: 2019/03/04

Date Edited: 2019/03/04

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