Putting it into Practice

Title: "What Do They Really Mean by Partnerships?" Questioning the Unquestionable Good in Ethics Guidelines Promoting Community Engagement in Indigenous Health Research.
Author: Brunger F, Wall D.
Date Published: 2016
Reference: Qualitative Health Research, 26(13), 1862–1877.
Are service users or carers authors: No/Not Known

Abstract: Researchers and community members worked together to decide how best to apply ethics guidelines for research involving Indigenous communities. They examined issues of NunatuKavut (Southern Inuit) authority and representation in the oversight of research. They questioned the taken-for-granted assumption of research ethics, that community engagement is an unquestionable "good." In this article, they present findings that community engagement, if done poorly can actually cause harm by causing community fatigue. If community members are unpaid and receive multiple demands for involvement that they cannot meet, this can limit their ability to have real oversight and control over research. The authors conclude that involvement needs to properly resourced to be ethical.

Related entry: none currently available

Website: https://www.ncbi.nlm.nih.gov/pubmed/27179021

Categories: journal article
general principles of good practice
ethical issues
paying service users for their involvement
lessons from direct experience of involvement
involving seldom heard groups

Date Entered: 2019/03/04

Date Edited: 2019/03/04

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