Putting it into Practice

Title: Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.
Author: Harrison JD, Auerbach AD, Anderson W, Fagan M, Carnie M, Hanson C, Banta J, Symczak G, Robinson E, Schnipper J, Wong C, Weiss R.
Date Published: 2019
Reference: Health Expectations, doi: 10.1111/hex.12873. Epub ahead of print
Are service users or carers authors: Yes

Abstract: The aims of this narrative review were to identify and summarise (a) the fundamental principles of patient engagement in research and (b) best practice, as well as assessing which aspects are most often reported. The authors carried out a literature review. They found the most commonly reported principles were "respect" and "equal power between all team members". Creating "trust between patient stakeholders and researchers" was also highlighted. The importance of providing training and education for both patients and researchers and providing financial compensation for patients' time and expertise were the two most commonly described aspects of best practice. Regular, two-way dialogue between patient partners and researchers was also reported to be important for successful engagement.

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Categories: journal article
service users and carers
relevant to all service users
general principles of good practice
description of involvement in a research project

Date Entered: 2019/03/18

Date Edited: 2019/03/18

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