Abstract: Public and patient involvement is a routine part of health services research to produce better designed and reported studies. Although co-production is recommended when involving people in research, the approaches used for involving people are usually designed and managed by researchers. This article describes how a group of researchers worked with patients and carers to develop and implement a model for involving public members in research.
Sixteen service users were involved through a workshop, meetings and email discussions. They specified the principles and operating characteristics of the model as an inclusive culture, adequate resources, accessibility, good communication and clarity of purpose and roles. Components of the model included an on-line Panel of members (n = 20), Steering Group meetings, a representation and communication system, facilitator, supportive research environment and access to research activities. Over 8 years, members were active in 218 research activities and held 22 Steering Group meetings. The model was named SUCCESS standing for Service Users with Chronic Conditions Encouraging Sensible Solutions.
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Categories: journal article service users and carers researchers relevant to all service users general principles of good practice lessons from direct experience of involvement
Date Entered: 2019/03/18
Date Edited: 2019/03/18