Abstract: Aim: To produce guidance for patient engagement in medicines development.
Method: A literature review gathered published examples of patient engagement. Multistakeholder groups drafted PE Quality Guidance drawing on the published evidence and their own expertise. The guidance was evaluated by public consultation. Examples of projects with good engagement practice were identified and assessed against the PE Quality Criteria to create a Book of Good Practice (BOGP).
Results: Seventy-six participants from 51 organisations participated in nine multi-stakeholder meetings (2016–2018). A shortlist of 20 relevant PE initiatives were identified. The PE Quality Guidance was agreed to be useful for achieving quality PE in practice, understandable, easy to use, and comprehensive. Overall, eight initiatives from the shortlist and from meeting participants were selected for inclusion in the BOGP.
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Categories: journal article service users and carers researchers relevant to all service users general principles of good practice guidance/guidelines General guidance on involving the public in research
Date Entered: 2019/04/08
Date Edited: 2019/04/08