Abstract: Aim: To explore how tokenism influences engaging patients in research, to help researchers work towards more genuine engagement.
Method: The Community Clinician Advisory Group and Patient and Clinician Engagement program held a workshop at the 2015 North American Primary Care Research Group meeting titled 'How Do We Move beyond Tokenism in Patient Engagement?' Patients, clinicians and academic researchers contributed examples of genuine and token engagement based on personal experience and knowledge.
Findings: The examples of genuine and token engagement were placed in three categories: (1) Methods/Structure of engagement, (2) Intent and (3) Relationship building. Long-term involvement was key to translating research into local community and practice. The group highly valued genuine intent and relationship building to combat tokenism. They noted that early genuine attempts at engagement may look like tokenism as researchers build enduring and trusting relationships with patient/community partners. They emphasised the importance of drawing on patient experiences throughout any research.
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Categories: journal article service users and carers researchers relevant to all service users general principles of good practice lessons from direct experience of involvement
Date Entered: 2019/04/27
Date Edited: 2019/04/27