Abstract: Aim: To identify and combine the published frameworks (tools, benchmarks, guidelines and checklists used to assess performance) for patient and public involvement in research, to see how these frameworks have been used and to see if they could be improved.
Methods: Frameworks were identified from published articles and evaluated.
Findings: The researchers found 65 frameworks. They grouped them into five categories: power‐focused; priority‐setting; study‐focused; report‐focused; and partnership‐focused. The frameworks were used mainly by the groups who developed them.
Since there are so many frameworks and very few are used beyond the original project in which they were developed, the researchers conclude there is little value in using an off‐the‐shelf framework. Instead it may be more helpful for project teams to co-design their own framework, using a menu of the resources currently available.
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Categories: journal article service users and carers researchers research commissioners relevant to all service users evaluating user involvement staff in research organisations
Date Entered: 2019/05/21
Date Edited: 2019/05/21