Putting it into Practice

Title: Frameworks for supporting patient and public involvement in research: Systematic review and co‐design pilot.
Author: Trisha Greenhalgh, Lisa Hinton, Teresa Finlay, Alastair Macfarlane, Nick Fahy, Ben Clyde, Alan Chant.
Date Published: 2019
Reference: Health Expectations Epub ahead of print. doi.org/10.1111/hex.12888
Are service users or carers authors: Yes

Abstract: Aim: To identify and combine the published frameworks (tools, benchmarks, guidelines and checklists used to assess performance) for patient and public involvement in research, to see how these frameworks have been used and to see if they could be improved. Methods: Frameworks were identified from published articles and evaluated. Findings: The researchers found 65 frameworks. They grouped them into five categories: power‐focused; priority‐setting; study‐focused; report‐focused; and partnership‐focused. The frameworks were used mainly by the groups who developed them. Conclusion Since there are so many frameworks and very few are used beyond the original project in which they were developed, the researchers conclude there is little value in using an off‐the‐shelf framework. Instead it may be more helpful for project teams to co-design their own framework, using a menu of the resources currently available.

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Categories: journal article
service users and carers
research commissioners
relevant to all service users
evaluating user involvement
staff in research organisations

Date Entered: 2019/05/21

Date Edited: 2019/05/21

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