Abstract: Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. This paper argues it is important to distinguish between patient and public involvement. The authors conclude that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. They analyse cases from the UK, Australia, and the USA, to show how making this distinction can help.
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Categories: nature and extent of public involvement in research reflecting on public involvement in research journal article
Date Entered: 2019/07/09
Date Edited: 2019/07/09