Evidence Library

Title: Patient and public involvement: Two sides of the same coin or different coins altogether?
Author: Matthew S. McCoy, Jonathan Warsh, Leah Rand, Michael Parker, Mark Sheehan.
Date Published: 2019
Reference: Bioethics, 1-8. [Epub ahead of print] doi.org/10.1111/bioe.12584
Are service users or carers authors: No/Not Known

Abstract: Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. This paper argues it is important to distinguish between patient and public involvement. The authors conclude that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. They analyse cases from the UK, Australia, and the USA, to show how making this distinction can help.

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Categories: nature and extent of public involvement in research
reflecting on public involvement in research
journal article

Date Entered: 2019/07/09

Date Edited: 2019/07/09

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