Evidence Library

Title: Evaluating community deliberations about health research priorities.
Author: Susan Dorr Goold Marion Danis Julia Abelson Michelle Gornick Lisa Szymecko C. Daniel Myers Zachary Rowe Hyungjin Myra Kim Cengiz Salman
Date Published: 2019
Reference: Health Expectations, Epub ahead of print, doi.org/10.1111/hex.12931
Are service users or carers authors: Yes

Abstract: Engaging underrepresented communities in health research priority setting could make the scientific agenda fairer and more responsive to their needs. This study evaluated an approach to engaging minority and underserved communities in setting health research priorities. Participants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured debates about health research priorities in professionally facilitated groups. The structure, process, and outcomes of the debate were assessed through surveys and interviews. The participants (age 18‐88 years) overrepresented minority groups. The discussion involved the majority of people and improved their knowledge about inequalities, but not about health research. Most participants supported using their group's decision to inform decision makers and would trust a process like this to inform funding decisions. The participants were particularly struck by their experience of hearing and understanding other points of view, sometimes surprised at the group's ability to reach agreement, and occasionally motivated to volunteer or become advocates.

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Categories: health
Identifying topics, prioritising and commissioning
impact on service users involved
impact of public involvement
journal article

Date Entered: 2019/07/26

Date Edited: 2019/07/26

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