Abstract: Engaging underrepresented communities in health research priority setting could make the scientific agenda fairer and more responsive to their needs. This study evaluated an approach to engaging minority and underserved communities in setting health research priorities.
Participants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured debates about health research priorities in professionally facilitated groups. The structure, process, and outcomes of the debate were assessed through surveys and interviews.
The participants (age 18‐88 years) overrepresented minority groups. The discussion involved the majority of people and improved their knowledge about inequalities, but not about health research. Most participants supported using their group's decision to inform decision makers and would trust a process like this to inform funding decisions. The participants were particularly struck by their experience of hearing and understanding other points of view, sometimes surprised at the group's ability to reach agreement, and occasionally motivated to volunteer or become advocates.
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Categories: health Identifying topics, prioritising and commissioning impact on service users involved impact of public involvement journal article
Date Entered: 2019/07/26
Date Edited: 2019/07/26