Putting it into Practice

Title: Embedding meaningful patient involvement in the process of proposal appraisal at the Dutch Cancer Society
Author: Anne-Floor M Schölvinck, Tjerk Jan Schuitmaker, Jacqueline E W Broerse
Date Published: 2019
Reference: Science and Public Policy, Volume 46, Issue 2, Pages 254–263
Are service users or carers authors: No/Not Known

Abstract: Although patient involvement in health research decision-making is growing, in practice it proves challenging to involve patients meaningfully and sustainably. This article looks at the factors in the system which influence whether patient involvement in reviewing funding applications is meaningful. It is based on a case study of involvement in the Dutch Cancer Society. Although at first all the stakeholders were positive about the involvement, they hadn’t developed tools or structures to support it. Once these were in place, it became apparent there were cultural barriers to its having an effect. The cultural shift took longer to come about and may have reduced the impacts of the involvement of patients initially. The authors conclude that overcoming such barriers requires an approach that considers the practical issues, the organisational structures for making decisions and the overall organisational culture.

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Categories: journal article
service users and carers
research commissioners
relevant to all service users
lessons from direct experience of involvement
commissioning research
review of research proposals
strategic level decision making
staff in research organisations

Date Entered: 2019/07/30

Date Edited: 2019/07/30

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