Evidence Library

Title: How patient and community involvement in diabetes research influences health outcomes: A realist review.
Author: Janet Harris, Johannes Haltbakk, Trisha Dunning, Gunhild Austrheim, Marit Kirkevold, Maxine Johnson, Marit Graue.
Date Published: 2019
Reference: Health Expectations Epub, doi.org/10.1111/hex.12935
Are service users or carers authors: No/Not Known

Abstract: Aim: To find out whether patient and public involvement in diabetes research has an impact on health. Methods: A review of reports of involvement in projects aiming to reduce risk and promote self‐management of diabetes. Findings and Conclusions: 29 relevant projects were found. Projects which involved patients/ public over a sufficient period of time enabled people to set priorities for research. Partnerships that committed to collaboration increased awareness of diabetes risk and helped people to co‐design and co‐deliver diabetes interventions. When these interventions were adapted to reflect the needs of people in different communities, the intervention became more relevant and acceptable to local people. The involvement of local people helped to build trust, leading to high levels of recruitment and retention, which project teams associated with achieving good health outcomes. However, the authors conclude that the proportion of diabetes studies that involve patients to this degree is surprisingly low. Barriers to resourcing partnerships need to be addressed.

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Categories: health
Designing research
impact on implementation and change
impact of public involvement
journal article
Implementation and change

Date Entered: 2019/07/30

Date Edited: 2019/07/30

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