Evidence Library

Title: Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community.
Author: Nura O. Aabe, Fiona Fox, Dheeraj Rai, Sabi Redwood.
Date Published: 2019
Reference: Health Expectations Epub, doi.org/10.1111/hex.12939
Are service users or carers authors: Yes

Abstract: This paper provides a unique insight into the process of co‐production, by weaving personal reflections with principles to evaluate the impact of co‐produced knowledge. It is based upon participatory research that was initiated by a ‘lay’ person, on behalf of a community organisation, seeking support for Somali families who are affected by autism. The paper explores the evolving partnerships that began with community theatre and qualitative research, and lead to extensive dissemination and impact on the community, all of which has been jointly owned and negotiated by the co‐researchers and community organisations. It demonstrates how (1) opportunities for all partners to be involved to the maximum degree possible throughout the research process can affect social change and (2) co‐produced research can become a catalyst that is dynamic and complex, achieving a multi‐layered impact.

Related entry: none currently available

Website: https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12939

Categories: impact on service users involved
impact on researchers
impact on implementation and change
impact of public involvement
journal article

Date Entered: 2019/07/30

Date Edited: 2019/07/30

Additional Info: