Evidence Library

Title: Helping Others: Reasons for Participation in Service User Involvement Initiatives from the Perspective of Adolescents and Young Adults with Cancer.
Author: Signe Hanghøj, Helle Pappot, Lisa Lyngsie Hjalgrim, Maiken Hjerming, Camilla Louise Visler, and Kirsten A. Boisen.
Date Published: 2019
Reference: Journal of Adolescent and Young Adult OncologyAhead of Print doi.org/10.1089/jayao.2019.0014
Are service users or carers authors: No/Not Known

Abstract: Aim: To investigate young people’s reasons for participation in service user involvement initiatives during their cancer journey. Methods: 12 interviews with cancer patients and cancer survivors aged 16–29 years. The participants had been involved in one or more service user involvement initiatives in a youth support centre and social organisation for young people with cancer in Copenhagen, Denmark. Results: Four main themes were identified: Community (Being together, Developing together, and In the same boat), Normality (A new normal and Something to do), Contribution (Something at heart, Support to other young people with cancer, and Improving the health care system), and Codetermination (Real participation and Influence on one's own everyday life). Conclusion: Participating in service user involvement initiatives had a positive impact on young people with cancer, as their participation recreated a feeling of being normal, being in control of everyday life, and enabled them to help others.

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Categories: health
impact on service users involved
impact of public involvement
journal article

Date Entered: 2019/07/30

Date Edited: 2019/07/30

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