The National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Yorkshire and Humber, worked with members of the public to develop a training package for members of the public to understand health research, and the ways they can be involved in doing it.
They collaborated to design an enjoyable and informative experience and then asked a university Public Partnership Group to host, and independently evaluate the package.
Method and design
The evaluation team included three service users/ carers and three academics. We obtained ethical approval from the University, and consent from the participants to gather data. We used surveys, interviews and observation to find out about the participants’ experience.
Findings and recommendations
We found that the package was well designed, skilfully delivered, interesting and informative. All participants, despite different experience and expectations, felt they understood more about the research process and had greater confidence in their ability to volunteer to get involved.
Delivery was rushed at times and breaks were short because there was a lot of information. The venue affected how comfortable participants felt.
We recommend reducing or simplifying the material to allow a slower pace and more breaks, more time in introductions, different ways to gain group feedback, andtaking care to create a comfortable training environment. A text book, or manual containing the materials in detail, would be a valuable addition.
The inclusion of public researchers in the evaluation team changed the way work was managed and completed for the better. At times it was difficult. The public members needed to be assertive to get their views understood and the experienced researchers needed to allow others to lead.
The training package was enjoyable and did increase the participants’ knowledge, understanding, skills and confidence. The experience of being involved with the evaluation was enriching for the team.
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Categories: journal article service users and carers researchers relevant to all service users training and supporting service users
Date Entered: 2019/08/02
Date Edited: 2019/08/02