Abstract: Little evidence exists to prove research with involvement leads to better health outcomes for patients. The drive for patient involvement in research comes from moral, ethical and political beliefs rather than evidence. Proving the link between involvement and changes to health, policy or services is difficult. The authors suggest a way of measuring such outcomes. It is based on measuring value to patients, value to researchers, improvements to research processes, impact on policies and decision-making, impact on health and impact on research culture.
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Categories: journal article evaluating user involvement
Date Entered: 2019/11/07
Date Edited: 2019/11/07