Methods: A mental health service user group designed a self-report questionnaire and sent this to every patient who received ECT during the period of the study.
Findings/ recommendations: This is the first prospective study of users' experiences of ECT which is based on a questionnaire designed by users. (Other studies with user-involvement have asked about people's past experience of ECT, whereas this study asked everyone who received treatment as the study went along). This overcomes criticisms of previous user-led studies, where the methods used to survey users may have led to an unusually high level of negative responses.
This study confirmed that there is a difference between clinician-led and consumer-led studies in terms of the reported benefits of ECT. As has been found with other user-led studies, fewer users said that ECT had helped them and fewer people would consider having ECT again.
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Categories: health Designing research impact on research impact on implementation and change impact of public involvement journal article
Date Entered: 2009/01/28
Date Edited: 2012/12/06