Evidence Library

Title: Eliciting users' views of ECT in two mental health trusts with a user-designed questionnaire.
Author: Philpot, M., Collins, C., Trivedi, P., Treloar, A., Gallacher, S. & Rose, D.
Date Published: 2004
Reference: Journal of Mental Health, 13(4), 403-413.
Are service users or carers authors: No/Not Known

Abstract:

Aims:

  • to determine whether a user-developed questionnaire could be used to measure user satisfaction with ECT
  • to find out users' views of ECT as a treatment
  • to compare findings from two mental health trusts.

Methods: A mental health service user group designed a self-report questionnaire and sent this to every patient who received ECT during the period of the study.

Findings/ recommendations: This is the first prospective study of users' experiences of ECT which is based on a questionnaire designed by users. (Other studies with user-involvement have asked about people's past experience of ECT, whereas this study asked everyone who received treatment as the study went along). This overcomes criticisms of previous user-led studies, where the methods used to survey users may have led to an unusually high level of negative responses.

This study confirmed that there is a difference between clinician-led and consumer-led studies in terms of the reported benefits of ECT. As has been found with other user-led studies, fewer users said that ECT had helped them and fewer people would consider having ECT again.

External link: The following links will take you to information on this entry on an external website. INVOLVE is not responsible for the content or the reliability of the external websites. Link to journal article

Related entry: none currently available

Categories: health
Designing research
impact on research
impact on implementation and change
impact of public involvement
journal article

Date Entered: 2009/01/28

Date Edited: 2012/12/06

Additional Info: