Aim: To describe how people with a chronic condition were involved as advisors to a research project exploring prescribing by pharmacists.
Method: 10 people with a chronic condition attended six meetings with researchers over the course of a year. The researchers took an ethnographic approach to reflect on these meetings and the impact of user involvement.
Findings/recommendations: The patient advisors helped to maintain a strong patient focus and kept the project grounded in the patient's perspective. They made a significant contribution to the content and direction of the project. They helped to shape the interview schedules and offered comments on interview transcripts. Their conclusions were incorporated into the final report.
The researchers report that at first it was difficult to shift from being in control to taking a more participative role, but by the end of the project they felt more confident of their skills as facilitators.
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Categories: public health Designing research Analysing and interpreting Writing up and disseminating impact on research impact on researchers impact of public involvement journal article
Date Entered: 2009/01/28
Date Edited: 2012/12/06