Putting it into Practice

Title: The ethics of survivor research: Guidelines for the ethical conduct of research carried out by mental health service users and survivors.
Author: Faulkner, A.
Date Published: 2004
Reference: Bristol: The Policy Press for the Joseph Rowntree Foundation.
Are service users or carers authors: Yes


This guidance is based on consultation with 50 service user and survivor researchers. Its aim is to provide helpful guidance on the ethical issues to be considered prior to the design and conduct of any survivor research project or research training programme. The guidance is structured under the following headings:

  1. Underlying principles
  2. Planning and design
  3. Recruitment and involvement (of fellow researchers)
  4. Training, support and supervision
  5. Involving participants
  6. Analysis and feedback 
  7. Dissemination and implementation
  8. Research Ethics Committees.

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Categories: service users and carers
mental health survivors
ethical issues
designing of research
undertaking research
analysing and interpreting data
writing up and disseminating
recruiting people to be actively involved in research
training and supporting service users
user-led research - good practice
General guidance on involving the public in research

Date Entered: 2010/07/28

Date Edited: 2012/12/10

Additional Info: