Putting it into Practice

Title: Patient-expert partnerships in research: how to stimulate inclusion of patient perspectives.
Author: Elberse, J., Caron-Flinterman, F. and Broerse, J.
Date Published: 2010
Reference: Health Expectations. 2011 Sep;14(3):225-39.
Are service users or carers authors: No/Not Known


This report summarises the observations made at a meeting attended by experts, patients and patient representatives to develop a joint research agenda. In spite of 'best practice' being followed by the event organisers, there were factors that still excluded the patients. These related to the set-up and the behaviour and verbal communication of the participants. This meant that the patients' input was less visible in the outcome of the meeting compared to the input of the experts. The authors identify some strategies that could be used to minimise the impact of these exclusion factors.

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Categories: service users and carers
research commissioners
lessons from direct experience of involvement
identifying and prioritising topics
chairs of groups involving service users
chairing meetings with service user members
staff in research organisations

Date Entered: 2011/01/17

Date Edited: 2012/12/10

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