This report summarises the observations made at a meeting attended by experts, patients and patient representatives to develop a joint research agenda. In spite of 'best practice' being followed by the event organisers, there were factors that still excluded the patients. These related to the set-up and the behaviour and verbal communication of the participants. This meant that the patients' input was less visible in the outcome of the meeting compared to the input of the experts. The authors identify some strategies that could be used to minimise the impact of these exclusion factors.
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Categories: service users and carers researchers research commissioners lessons from direct experience of involvement identifying and prioritising topics chairs of groups involving service users chairing meetings with service user members staff in research organisations
Date Entered: 2011/01/17
Date Edited: 2012/12/10