The author reflects on her experience of working with people with learning difficulties on health-related research, to draw out the lessons that could inform practice. She discusses the tensions between ensuring the research produces high-quality information and ensuring a high-quality involvement process. She also comments on accessibility issues, and the need to include those with the most severe impairments, rather than relying on the most able people with learning difficulties. She concludes that it is important to ensure involvement brings added value, given the high cost of doing it well.
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Categories: health reflecting on public involvement in research journal article
Date Entered: 2012/03/26
Date Edited: 2012/03/26