Evidence Library

Title: Patient advocates’ role in clinical trials
Author: Katz, M., Archer, L., Peppercorn, J., Kereakoglow, S., Collyar, D., Burstein, H., Schilsky, R. and Partridge, A.
Date Published: 2012
Reference: Cancer. 2012 Oct 1;118(19):4801-5. doi: 10.1002/cncr.27485. Epub 2012 Mar 5.
Are service users or carers authors: Yes


Aim: To evaluate the role and value of patient advocates in cancer clinical trials.

Method: An online survey was sent to current and past advocates and investigators working in cancer research in the US.

Results: The advocates reported greater impact than the investigators, including influencing trial protocols, helping with recruitment and dissemination of trial findings to the wider community. All respondents commented on how involvement could be improved.

Conclusions: Strategies to improve advocate training and advocate-investigator communications may enhance the role of patient advocates.

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Related entry: none currently available

Categories: health
Designing research
Writing up and disseminating
impact on research
impact of public involvement
journal article

Date Entered: 2012/09/04

Date Edited: 2012/11/20

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