Aim: To evaluate the role and value of patient advocates in cancer clinical trials.
Method: An online survey was sent to current and past advocates and investigators working in cancer research in the US.
Results: The advocates reported greater impact than the investigators, including influencing trial protocols, helping with recruitment and dissemination of trial findings to the wider community. All respondents commented on how involvement could be improved.
Conclusions: Strategies to improve advocate training and advocate-investigator communications may enhance the role of patient advocates.
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Categories: health Designing research Writing up and disseminating impact on research impact of public involvement journal article Recruitment
Date Entered: 2012/09/04
Date Edited: 2012/11/20