Evidence Library

Title: To what extent can people with communication difficulties contribute to health research?
Author: Palmer, R. & Paterson, G.
Date Published: 2013
Reference: Nurse Researcher, 20 (3), 12-16
Are service users or carers authors: No/Not Known

Abstract: This paper presents a model of involvement for people with aphasia, a communication problem commonly experienced after a stroke. The researchers set up an advisory group for people with aphasia and their carers. The group was involved at every stage of a project to assess the cost-effectiveness of computer-based treatment for aphasia. The group’s involvement made a difference to: the recruitment process and materials; the training guide on the use of the computer therapy; the dissemination of the results of the study to people with aphasia. The group members reported that their involvement had: increased their confidence in communicating; provided a source of peer support; been motivating and stimulating; led to feelings of empowerment in being able to influence future treatment for others.

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Categories: health
public health
social care
Designing research
Writing up and disseminating
impact on research
impact on service users involved
impact on researchers
impact of public involvement
journal article
Recruitment

Date Entered: 2013/05/08

Date Edited: 2013/05/08

Additional Info: