Evidence Library

Title: To what extent can people with communication difficulties contribute to health research?
Author: Palmer, R. & Paterson, G.
Date Published: 2013
Reference: Nurse Researcher, 20 (3), 12-16
Are service users or carers authors: No/Not Known

Abstract: This paper presents a model of involvement for people with aphasia, a communication problem commonly experienced after a stroke. The researchers set up an advisory group for people with aphasia and their carers. The group was involved at every stage of a project to assess the cost-effectiveness of computer-based treatment for aphasia. The group’s involvement made a difference to: the recruitment process and materials; the training guide on the use of the computer therapy; the dissemination of the results of the study to people with aphasia. The group members reported that their involvement had: increased their confidence in communicating; provided a source of peer support; been motivating and stimulating; led to feelings of empowerment in being able to influence future treatment for others.

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Categories: health
public health
social care
Designing research
Writing up and disseminating
impact on research
impact on service users involved
impact on researchers
impact of public involvement
journal article

Date Entered: 2013/05/08

Date Edited: 2013/05/08

Additional Info: