Abstract: This paper presents a model of involvement for people with aphasia, a communication problem commonly experienced after a stroke. The researchers set up an advisory group for people with aphasia and their carers. The group was involved at every stage of a project to assess the cost-effectiveness of computer-based treatment for aphasia.
The group’s involvement made a difference to: the recruitment process and materials; the training guide on the use of the computer therapy; the dissemination of the results of the study to people with aphasia.
The group members reported that their involvement had: increased their confidence in communicating; provided a source of peer support; been motivating and stimulating; led to feelings of empowerment in being able to influence future treatment for others.
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Categories: health public health social care Designing research Writing up and disseminating impact on research impact on service users involved impact on researchers impact of public involvement journal article Recruitment
Date Entered: 2013/05/08
Date Edited: 2013/05/08