Evidence Library

Title: Expectations of new treatment in rheumatoid arthritis: developing a patient-generated questionnaire
Author: Hofmann, D., Ibrahim, F., Rose, D., Scott, D., Cope, A., Wykes, T. & Lempp, H.
Date Published: 2013
Reference: Health Expectations doi: 10.1111/hex.12073. [Epub ahead of print]
Are service users or carers authors: No/Not Known

Abstract: This article reports on a project which involved patients with rheumatoid arthritis (RA) in developing a new outcomes measure for measuring patients’ expectations prior to treatment. Such a measure can identify what individual patients think is most important for their healthcare and so help tailor treatment to their needs. A patient researcher with experience of a similar long-term condition helped to run focus groups with rheumatoid arthritis patients and to consult two expert panels with patients. The new measure was tested with patients receiving outpatient treatment for RA. The final draft version is being tested to see how reliable it is and will then be piloted in a clinical trial.

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Categories: health
Designing research
impact on research
impact of public involvement
journal article

Date Entered: 2013/10/07

Date Edited: 2013/10/07

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